I am writing this before I attend the World Parkinson’s Congress in Glasgow at the end of September. It is an unusual meeting because its target audience is people with Parkinsons, carers, doctors, nurses, physiotherapists and scientific researchers. Getting everyone together means that a greater understanding can be achieved between the different groups of the challenges faced in everyday life. For some scientists it will be the first time they have ever met someone with the condition they are studying. I will let you know how I get on and if there is anything new to tell you about.
Dr Jackson and I are very pleased to hear that we are going to be involved in a major research project into the early signs and symptoms of Parkinson’s. Researchers from OxfordUniversity will be visiting Amersham Hospital to conduct the study. A group
of people diagnosed with Parkinson’s in the last three years will be invited to attend. The visit will involve filling in questionnaires and talking to a research nurse and doctor. Some people will be asked to give blood and skin samples for analysis. The study will not directly benefit those taking part but it will help in gathering knowledge about what the earliest signs of the condition are.
I now have over 700 patients with Parkinson’s in Buckinghamshire. Sometimes it’s hard to keep track of everyone. If you think it is a long time since you saw me please don’t hesitate to get in touch. Also please don’t assume that I will be informed if you are admitted to hospital. Let me know and I will come and see you.